Jonathan Pitre has a dreaded disease called Epidermolysis Bullosa. Even with the tenderest touch his skin falls off and for this he earned the name ‘butterfly boy’. This 14 years old lad from Canada has to stay wrapped in bandages from head to foot for protecting from skin infection and suffers from continuous unbearable pain. But this brave boy refuses to give up. Although he is now confined to a wheelchair and knows that there is no cure for this, he travels across the country delivering inspirational talks. Explore the video to see him fighting.